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The Sorsby's Fundus Dystrophy
Registry (SFDR) has been established by the Department of
Ophthalmology at Stanford University, to advance our
understanding and treatment of Sorsby's fundus dystrophy,
and to serve as an educational resource for patients and
their families.
Many patients with early onset macular degeneration and a
positive family history in two or more close relatives may
in fact have Sorsby's fundus dystrophy or a related variant.
We encourage such patients to inquire their physicians
whether this diagnosis has been considered. We are happy to
provide background information on this condition as part of
the educational mission of this website.
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The goal of the registry is to promote research into the
cause of and the treatment for Sorsby's fundus dystrophy,
which is an important blinding disease that currently has no
cure or effective treatment. Except for an earlier age of
onset, Sorsby's fundus dystrophy closely resembles other
types of macular degeneration, such as age-related macular
degeneration, which is the commonest cause of blindness in
persons aged 65 and older. By understanding this disease
through research, we hope to contribute to the greater
knowledge of macular degeneration in general. The Principal
Investigator of the SFDR project is
Professor Mark S. Blumenkranz, M.D.
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Our Principal Investigator Professor Mark Blumenkranz, M.D. |
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| Our collaborator,
A/Professor Douglas Vollrath and Dr. Ruth Lin at the
Department of Genetics, Stanford University |
Our Study
Coordinator Dr. Kathy Wu |
Our experienced
registered nurse Janet |
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| Our
experienced technicians Oscar and Eric |
Our study location
at Stanford Hospital, California Vitreoretinal
Center, located in Menlo Park, CA. |
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The Sorsby's Fundus Dystrophy Registry maintains a database
that is composed exclusively of information knowingly and
voluntarily provided to the SFDR by the participants. The
SFDR respects the privacy of our participants and ensures
the database be maintained strictly confidential and any
data be used in accordance to the Stanford Institutional
Review Board For Research. The SFDR does not disclose, give,
sell, or transfer any personal information about our
participants unless required by law.
Information contained within this website is intended solely
for educational/informative purposes and is neither intended
nor implied to be a substitute for professional medical
advice relative to your specific medical condition or
question. By using this website, you agree to this Medical
Disclaimer. |
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